2010 Poster Sessions : Barriers and Facilitators of Personal Health Record Adoption in Low-Income Families with Children with Special Health Care Needs

Student Name : James Xie
Advisor : Terry Winograd
Research Areas: Graphics/HCI
This project aims to explore the barriers and facilitators to adoption of electronic Personal Health Records (PHRs) in low income families/caregivers of children with special healthcare needs (CSHCN). Focus groups are being conducted in Spanish, Vietnamese, Cantonese, and English with caregivers of CSHCN who utilize public health insurance. These focus group studies will help to understand: 1) the current methods by which caregivers manage healthcare information and 2) the knowledge, needs, and concerns of caregivers about PHRs.
Caregivers for CSHCN have especially demanding information management needs which could be fulfilled by a well designed PHR. One-on-one usability studies are being conducted using the freely available Google Health PHR with fictitious patient data imported from Lucile Packard Children's Hospital's Cerner electronic medical record. The usability studies will elucidate the design elements and characteristics of a PHR that make it easy or hard to use through a task based simulation that will be assessed with Nielsen's ten usability heuristics. The project will provide a basis for understanding what design standards should be used in order to ensure versatility, robustness, and cultural sensitivity in health information systems regardless of the user's health or technology literacy level.

James Xie is a senior undergraduate honors candidate in the Department of Computer Science at Stanford University advised by Professor Terry Winograd. His research collaborators are Dr. David Bergman, Dr. Sahar Rooholamini, and Doriel Pearson MS, PA-C in the Department of Pediatrics at the Lucile Packard Children’s Hospital and the community support groups Support for Families with Disabilities in San Francisco and Parents Helping Parents in San Jose. Additionally, James is a Haas Center Public Service Scholar seeking to apply his research findings to benefit the public good. James’s research interests include human computer interaction and usability engineering in health information technologies.